Managing Registries and Research Data Sets


This documentation references PopMedNet 2021.1 +

For version 5.0 documentation, please see PopMedNet User's Guide v5.0

PopMedNet User's Guide

Based on version 2021.1 +


Managing Registries and Research Data Sets

The Registries and Research Data Set panel on your Organization Profile Page enables you to specify the registries and research data sets available at your organization. Note that specifying these on your Organization Profile Page does not imply that they are available to the network.

A list of registries and research data sets is found in the Network > Registries tab. The entries are defined by other users in the network. The options available to define the classification, condition of interest, and purpose of the entry are consistent with the options for entries at the Registry of Patient Registries.

Follow the instructions below to add a new entry to this list.

 

Adding a Registry/Research Data Set to your Organization Profile Page

In the Registry & Research panel, click Add Registry and select an entry from the list. If your registry or research data set is not present in the list, click New Registry and follow the instructions below to add it to the network.

Once you have added an entry, click on its name to navigate to its details page.

To delete an entry, check its checkbox and click Remove.

 

Organization Profile Page - Registry and Research Data Set Panel

Defining a new Registry/Research Data Set

View the Registry and Research Data Set list by navigating to the Network > Registries tab.

Add a new entry to the list by clicking Add Registry.

 

Enter the basic information about the entry.

  • Name: Enter the name of the registry or research data set.
  • Type: Select "Registry" or "Research Data Set" from the dropdown menu.
  • RoPR URL: If the registry is registered at the Registry of Patient Registries, enter the URL for it's page here.
  • Description: Enter a description of the registry or research data set. Note that this description should be a general description of the registry or research data set and should not be specific to your site's implementation of the registry or research data set.

Categorize your entry according to the criteria from the Registry of Patient Registries. For each category, select as many options as apply.

  • Classification
  • Condition of Interest
  • Purpose


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